2012 Report on the State of the Art of Rare Diseases Activities in Europe - Part I: Overview of Rare Disease Activities in Europe

Date de parution
juillet 2012
Type
Rapport
Editeur
European Union Committee of Experts on Rare Diseases (EUCERD)
2012 Report on the State of the Art of Rare Diseases Activities in Europe - Part I: Overview of Rare Disease Activities in Europe
Langue: Anglais
ISBN: 978-92-79-25355-3
pdf, 2745 Ko, 76 pages
[Rapport 2012 sur l’état de l’art des activités relatives aux maladies rares en Europe - Partie I: Aperçu des activités sur les maladies rares en Europe ]
This document was produced by the Scientific Secretariat of the European Union Committee of Experts on Rare Diseases (EUCERD), through the EUCERD Joint Action: Working for Rare Diseases (N° 2011 22 01), which covers a three year period (March 2012 – February 2015).
The present report aims to provide an informative and descriptive overview of rare disease activities at European Union (EU) and Member State (MS) level in the field of rare diseases and orphan medicinal products up to the end of 2011. A range of stakeholders in each Member State/country have been consulted during the elaboration of the report, which has been validated as an accurate representation of activities at national level, to the best of their knowledge, by the Member State/country representatives of the European Union Committee of Experts on Rare Diseases. The reader, however, should bear in mind that the information provided is not exhaustive and is not an official position of either the European Commission, its Agencies or national health authorities.
The report is split into five parts available on the EURCED website
  • Part I: Overview of rare disease activities in Europe
  • Part II: Key developments in the field of rare diseases in 2011
  • Part III: European Commission activities in the field of rare diseases
  • Part IV: European Medicines Agency activities and other European activities in the field of rare diseases
  • Part V: Activities in EU Member States and other European countries in the field of rare diseases
Each part contains the following description of the methodology, sources and validation process of the entire report, and concludes with a selected bibliography and list of persons having contributed to the report.
  • Dernière modification le 28-09-2015